Thursday, March 19, 2009

Jessica's Story


I was 28 when I was diagnosed with breast cancer in December 2006. I had a routine breast exam as part of my annual check-up. Although she told me that I had nothing to worry about, my primary care physician recommended a follow-up ultrasound and mammogram.

As it turned out, I had a lot to worry about. Two days after Christmas I learned my biopsy results: cancer. Less than two months later, I received another blow. The pathology report from my mastectomy indicated invasive ductal carcinoma. Not only had I lost my breast but I was going to lose my hair as well. 17 days after my first chemotherapy infusion (which landed me back in the hospital because I got so ill), my long straight hair started to fall out in clumps and my now-husband, Michael, found me crying on the bathroom floor.

But we pulled it together and didn’t miss a beat. We drove to a salon that sees women undergoing chemotherapy and got our heads shaved bald. The process was strangely empowering at a time when I had little control over anything else. From that day forward, at least outside the office, my preferred head covering was nothing. . . just my shiny bald head.

In the week before my last infusion in June 2007, two things happened. Michael proposed to me, and I accepted. And, along with 8 supportive friends, I walked the Komen Race for the Cure to celebrate the end of my treatment and our successful efforts to raise over $20,000 to support Komen. I was proud of my efforts, but all of those signs on race day – “in loving memory,” “we miss you mom” – were too much for me. I tried a support group, but the stories of my fellow patients and survivors’ diagnoses, treatments and prognoses scared and overwhelmed me. The support group setting was right for some people but not for me.

Six months later, I found what I needed when I joined the cancer to 5K program, a UCF-supported training program that helps young adult cancer survivors prepare for a 5k road race. My fellow runners and I shared a struggle and a goal but we didn’t talk much about cancer while we were running. We talked about life, and work, and weekend plans. With them, I ran a 5k and then a 7-miler, and today, I am training for a half marathon with Team in Training. I have taken control of my physical fitness, and along with my improved physical health have come the confidence and emotional security that I needed.

I also learned that I didn’t want to avoid cancer patients and survivors as I initially thought. I simply wanted their companionship in a different setting. With that in mind, I wrote to UCF in the hopes that I could find another “quiet survivor.” UCF and Imerman Angels paired me with a breast cancer survivor in Chicago who is my age, with my same diagnosis and treatment, who has a professional career, and who is planning a wedding to the man who saw her through diagnosis and treatment. We email each other our stories and together, we are dedicated to living healthy and happy post-cancer lives.

But I will admit that a breast cancer diagnosis at 28 was shattering. Even for a fairly confident woman whose notions of self worth are not wrapped up in body image, losing a breast was traumatic. More than at any other age, I wanted to feel and look pretty. But after my surgery, my clothes didn’t fit quite right; they pulled to one side. I became self-conscious in the gym locker room. I felt that people on the street could look at me and tell that I was disfigured under my layers of clothing, or that they could see that my implant was larger than my natural breast. I would glance around a crowded bar or restaurant and think to myself: I’m all alone. These people have no idea what I’ve been through.

Because of my age, I also confronted issues of fertility. My doctors couldn’t tell me whether I would be able to have children after chemotherapy (I have since met many woman who have conceived after treatment). Although I didn’t want children at the time, I also didn’t want cancer to make this important life decision for me. So I consulted a fertility specialist about harvesting eggs. But in the end, I couldn’t bear the thought of injecting myself with the very hormones that fueled the growth of my hormone-receptive cancer. And, I couldn’t fathom delaying my chemotherapy to do it. So, I decided to take the risk that I might not be able to naturally or otherwise conceive. Michael was fully supportive, and I am thankful for that.

At a time in my life when everything should have been moving forward with an eye toward the future, my life plans came to a screaming halt. But despite cancer, Michael and I married in September, and I turned 31 in February.

My hopes for my 31st year? (1) no more cancer, (2) complete a sprint-distance triathlon.
Jessica Tanner
Breast Cancer Survivor

Monday, March 16, 2009

Eleven-THE EVENT Experience

My first annual UCF event was a fabulous experience! Last week I attended 11, the Event with my girlfriends, two of whom are also cancer survivors. It was a great night, and I was honored to be chosen as a survivor guest. The themed chairs were incredible to look at- you saw into the heart of a survivor, caregiver, or supporter- and how cancer personally effected them. The chairs were full of color, hope, uniqueness, time, and energy.

There was a special chair for all survivors to sign- and that meant a lot to Nancy, Shannon and me. I always am so encouraged and in awe of how hard UCF works for young adult cancer survivors.

Cancer Survivors: Sylvia (5 years), Shannon (2 years) & Nancy, (1year).

While in the main program in the auditorium it was amazing to look around and see all of the support there was. It's quite an honor and encourages me to give back and help for those who have helped me on my cancer journey.

Listening to a former American Idol contestant Diana Degarmo was awesome- she lit up the stage. Seeing all of the honorees and hearing what they are doing for UCF and the cancer community was amazing- it was an honor to be among them! And Vern Yip had a beautiful tribute to his mother, and the premier of his Deserving Design episode featuring a UCF Scholarship winner (and major butt kicker with cancer!) was quite a treat.

The night was awesome, and I can't wait till 12- the event! :)

Sylvia Donovan
Hodgkin’s Lymphoma Survivor

Wednesday, March 11, 2009

Designing A Hopeful Community for Young Adults Fighting Cancer




On Monday, we celebrated an exciting milestone in our organization’s history. In addition to turning eleven years old and reflecting on many years of service to the young adult cancer community, this years event also marked the organizations renewed commitment to our local community – Howard County and the Mid-Atlantic Region. One year into implementing a five year strategic plan, the UCF has made a strategic decision to allocate the majority of its organizational resources towards programs and projects that impact the local community. By scaling back our involvement in several national initiatives and focusing on a few core programs impacting the Mid-Atlantic Region, the UCF believes it will make a more profound impact on the lives of the young adults and families it reaches. In addition, a more focused organization will enable the UCF to develop model programs that can be evaluated and replicated in other communities and institutions across the country.

Eleven was a huge success and paid tribute to five community partners that have helped us get to where we are and will continue to be instrumental in our future work at the community level. We honored the following groups and individuals for their outstanding commitment to the UCF and young adults fighting cancer; our Founders Award to HGTV’s Vern Yip, our Partner Award to Howard County General Hospital: A Member of Johns Hopkins Medicine, our Young Adult “Fight” Award to cancer survivor Holly Gannoe and her Cancer to 5K program, our Volunteer Award to Felix Scherzinger & Eden Stotsky for their work on Long After Cancer, our Hope Award to Dr. Kevin Cullen of University of Maryland Greenebaum Cancer Center.

The event also featured inspiring remarks HGTV host and UCF Founders Award recipient, Vern Yip, along with an advanced screening of an episode of Deserving Design which featured the story of young adult cancer survivor & UCF Scholarship recipient Christina Gavegnano.

Check out some exciting activities around Eleven – THE EVENT

Vern’s visit University of Maryland Greenebaum Cancer Center – http://www.umgcc.org/patient_info/ulman_nav.htm
Vern’s visit to Howard Community College – http://www.explorehoward.com/events-entertainment/16386/yip-finds-deserving-designs-hcc-event/

Brock Yetso
Executive Director

Wednesday, March 4, 2009

“Behind the Scenes” with HGTV’s Vern Yip – Sneak Preview of UCF Deserving Design Episode

In early November 2009, I traveled to Atlanta, GA to be on the set of HGTV’s Deserving Design with Vern Yip. Click here for a behind the scenes look of the making of a very special Deserving Design episode that will feature UCF Scholarship Winner and cancer survivor Christina Gavegnano.

On Monday March 9, 2009, UCF will host Eleven – THE EVENT at the Horowitz Performing Arts Center where we will have an ADVANCED SCREENING of this Special Deserving Design episode.

To learn more or purchase tickets for Eleven – THE EVENT
visit www.ulmanfund.org/11theevent, email Debbie@ulmanfund.org or call 410.964.0202 ext. 103

Brock Yetso
UCF Executive Director

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